Routledge - Motor Neurone Disease (Experience of Illness) Book

Motor Neurone Disease presents one of the most difficult challenges to manage both medically and socially. This condition leads to the loss of control over most muscle systems in the body, and currently, there is no known cause or cure. Historically, clinicians were often reluctant to share a diagnosis with patients or their families, leading the condition to be described as one of the best kept secrets in medical practice. This book explores the changing landscape of the disease. In recent years, the public profile of Motor Neurone Disease has changed dramatically due to the work of various organizations established to support sufferers and their families. This text provides a look into the experience of the illness and the evolving ways in which the medical community and support networks interact with those affected by this complex condition.